Keren…updated list
Posted by Glenn
I thought it might be useful for new visitors, if I compiled a list of all the posts so far relating to Keren. These are in order of posting, unlike the “Recently Written” links, which are listed most recent first.
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Welcome, to a family touched by Trisomy 18
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Our First Encounter with Trisomy 18
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Special Care Baby Unit in Antrim Area Hospital (SCBU)
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The Name…Keren
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The Confirmation of Trisomy 18
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Meeting their little sister, for the first time…
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Holding our new baby for the First Time
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Keren, Our Wee Fighter!
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Keren’s week in SCBU
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Knocklayde…with a slight difference!
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Tiny Clothes, for our Tiny Baby
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Learning to feed wee Keren
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Keren was so content
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Dublin Airport…overnight
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As Light as a Feather!
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Wee Keren…Fast Asleep
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Keren…Wide Awake!
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Keren gets home for an Afternoon
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Your baby Keren, looks so perfect and beautiful. My nephew’s baby has Edwards Syndrome and has been on a breathing tube since her birth two weeks ago. The doctor says she will die without it so they have decided to remove it and let nature take its course. His baby has not even responded to his voice, and your baby was looking around and moving normally. Could you tell me more about her and how long she lived? Thank you.
Hi Lori,
So sorry to hear of your nephews daughter, it must be very difficult for him, and for all of you…it was a big shock for our whole family circle.
About the breathing tube, I am sure the doctors do not make decisions like that lightly, and it must be the kindest thing for the wee baby. So hard to understand.
Two weeks can be young enough, even for a healthy baby to respond to voices…we are trying to remember about our video, we think it might have been taken around six weeks, so she was a wee bit stronger by then.
Keren was with us here for eight and a half precious weeks, and we cherish the memory of every minute.
I hope they just try to enjoy the time they have, hold her, and take photos if they can.
We are intending to update the site here, with more memories of Keren, but with a young family it is very difficult to find the time, we will try to get some more up soon.
Thinking of your family,
Glenn & Geraldine